Action, lights, lets roll.

It really is exciting times for me and blogging. After toying with the idea for some time I have decided to enter video blogging. This present blog will be available for several years yet. But the aim is for the video blog to take over where this one ends during the next few years. It will be hosted on YouTube so everyone anywhere will be able to view it.

It really has been amazing working on this new project. There is a lot more to video blogging than simply sitting in front of a camera and talking. Editing and camera skills have had to be learned. An intro and outro to be made. Techniques – all this and more to be worked on. Now hopefully in a few weeks I should be ready to produce my first video blog.

camera

A short while ago I would not have considered video blogging. But the more I thought about the idea the more I started to fall in love with the idea. But what does it give you, my fellow copder that my written blogs don’t?

The start of the new video blogs will be an introduction followed by short regular blogs on copd. I plan to cover from diagnosis and the mild stage, working through to stage four and how to make life easier. To describe the dangers and effects of oxygen deprivation, the bump and the life changing effects of all this. The benefits of breathing and general exercise will be shown as well as at times short demonstrations. Equipment can be shown including the oximeter. Simple items that help to make life easier, and oxygen equipment. A demonstration showing how fast blood oxygen saturation levels can go down when moving will also be made, and how I plan for trips away, something that is done with almost military precision. Most of all when possible I will try to show the positive side to highlight although our lives change with copd, it does not end. That there is a lot of living and enjoyment still to be had.

When out and about Lynne will have the video camera, and film me on a tramper, or with my smaller scooter, or just enjoying life’s simple pleasures. Short clips that will fall into blogs I am working on.

For now it is off to check a new lapel microphone to see how well that works. For now. Keep smiling and most of all Breathe Easy.

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Aids that help us. The mobility scooter.

As most you guys know, I have had copd for close on 30 years now. During the slow progression of my illness I have needed to make life changing decisions to continue to get the most out of life. Non more so than after I suffered ‘The Bump‘.

I am sure many of you guys have experienced what it is like to walk a very short distance before having to stop to regain your breath. The length walked becoming less, while the recovery time takes longer before you can take a few steps again. I found that hard with the result I stopped enjoying getting out the car to look around. I was also very aware my wife Lynne was not enjoying herself either. How could she when she was spending so much time waiting for me to move again.

I might have given up on going out at all, considering it was not worthwhile if I could not walk around the promenade, or the shopping centres, or nature parks that I enjoy so much. There are so many places I enjoy visiting the list is vast. Everything got better after we visited Paignton Zoo in Devon, UK during a holiday. There was not a chance I was going to get around that zoo on my feet. It is hilly, and vast. To me with little breath it was. At the entrance we noticed mobility scooters for hire for the disabled. Without hesitation I hired. What a beautiful fun-filled day that was. I am sure only the puffers and panters among us realise what a joy it is to be out and not feel breathless. I drove around Paignton zoo on my little hired cart having the time of my life. Lynne enjoyed herself too. I rode up hills ahead of Lynne calling down joking why are you so slow. The day was a brilliant success. I vowed no longer was I going to struggle. I was buying a scooter of my own and claiming back my life. Lynne was delighted. Sadly though. Many, even my now departed mother, would not buy a scooter. Thinking for some insane reason it made them look weak, lesser than they are. Believe me. To not use aids that are available to us denies us many pleasures.

scooter

Many small scooters break down into small sections. But some are still heavy to lift. I was going to struggle even so, as would Lynne. An answer had to be found. We chose to buy an estate car ( Station wagon ) to be able to fit the scooter in the back-end.. Then had a 80 kg hoist fitted just inside the rear of the car to lift the scooter in and out. This now enables me to visit very many places without getting overly breathless. I use the scooter for my photography, ( a future blog ), can carry all my oxygen needs with me. Shop, ride along the seaside prom, go on holiday. If you are having problems with mobility please. Make it easy on yourself. Get yourself a ride as you will never regret it.

Most of all I miss not being able to walk on the moors, or up the mountains. I love nothing more than being in the countryside, enjoying the peace and solitude, singing of the birds or watching the wildlife. Nowadays I hire a large scooter called a tramper. That is me on the photo to the right on a ‘tramper’. The picture was taken on Exmoor. A place where it would be impossible for me to visit without a tough all terrain scooter. Using a tramper I also drive to the top of mountains on occasions. The beauty is these scooter not only carry an oxygen supply for me, but also my camera gear, waterproofs, refreshments and anything else I need.

I can visit almost anywhere as long as it is scooter friendly ( Google walking – another future blog ). I make friends while out on my little cart. Get lots of smiles. Oh and don’t tell Lynne, get chatted up sometimes by the ladies.

This is the first of a series of blogs for showing how we can overcome obstacles despite our handicap. Using my experiences as an example. Those of us at the severe or very severe stage will find this of most use. But hopefully will be an inspiration to those of you that are fearful for the future as you will see that even if years down the line you have to make changes they are possible. And that you can still lead a good and useful life. Copd is a very slow progressive illness. It has taken 30 years for me to get here. Yet I am planning lots for this year, and the next. The truth is the majority of us will die with copd, not because of it.

Until I write again. Breathe easy, smile and remember. We might be in the slow lane. But life can still be good.

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Hello friends. I am pleased to be back.

It really has been a long time since I have written a blog. I have been busy, doing the right things, and for the most part have been well. Sadly time filled left me neglecting to write more. But now I plan lots of posts this year for you guys to read even though hopefully 2017 will be a busy fun filled year.

First I want to offer a tremendous thank you to you guys that supported this blog by donating to the just giving page I put up at the end of 2016. It is expensive to fund a blog over a long period so decided on an appeal to help fund. Yes there are some free sites out there but they are very restrictive, and more importantly security is not as good as this one. For instance no spam reaches us as it has to get past my software first. Once again a very big thank you. Your kind donations have ensured this blog remains live for at last another four years. I am very grateful.

tramper

During my absence I have sat as a patient representative with my local health board, chairing our local Breathe Easy group, attending several committees with the British Lung Foundation, and advising on steering committees. . This all keeps me active even though I use a scooter for mobility. I have also managed plenty of activities I enjoy. Photography, trips out for a meal, and to the cinema, and a couple of holidays have all been enjoyed. Getting out, meeting people, planning, organising, researching, all are good as that keeps us active. I often say my lungs might not be too good, but my brain is as good as ever.

Recently I have researched and tried out different products in trying to find something that may help us lead a better life. Vitamin D3 has been a huge success in improving mine, and many others lives. I am now trying out several products and will be talking about them soon. Will any get the thumbs up or down? I will show that one in particular is looking very promising and write about that soon. Plus look out for more blogs, and more exciting research on my favourite subject, vitamin D.

During this years coming blogs I also plan to write about my life in general. How I manage despite having very severe copd – and having to use aids to help me live a better life. How do I manage to do so much, even though little of it is physical. I have a weeks holiday booked in May to North West England. I have never been there on holiday before. I plan to take you through the planning. To show how we can do most things.

I have used oxygen for mobility for nearly five years now. The use of oxygen has really given me my life back. During that five years I have used liquid oxygen, gas cylinders, portable concentrators, and the large ones too. I will go into depth about oxygen in a future blog.

Lets also talk about visiting restaurants, planning events, or a visit to a zoo or national park. Large scooters such as the trampers that I am so fond of hiring, and racing up mountains on with oxygen, and a camera to take some of my many photos. Lets talk about photography. How do I manage to get some amazing shots even though my mobility due to breathlessness is limited. Lets blog about – living.

Anybody reading this blog for the first time if you have not already joined am welcome to join many hundreds of us copd’ers at my FB copd suport help site, ‘We strive to breathe easier‘. There is lots of friendly people, and advice there, and you will not only receive a good welcome but realise you really are not alone

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